Jakość życia matek dzieci z mózgowym porażeniem dziecięcym. Poczucie własnej skuteczności jako czynnik modyfikujący funkcjonowanie w sytuacji długotrwałego sprawowania opieki nad dzieckiem niepełnosprawnym

Abstract

Birth of a child with cerebral palsy (CP) are usually associated with changes in the quality of life of his parents, especially mothers. This means reducing the current and antycipate quality of life for most families; it is a cause of severe psychological stress (trauma). Especially the mother take a number of obligations related to the treatment, rehabilitation and responsibility for the fate of the child. Self-efficacy is a factor that may affect the achievement of the challenges, the satisfaction of parental tasks, sense of control and influence on the situation, and thereby – this determine the activity and involvement in the treatment and upbringing the child. Aim of the study was assess the level of self-efficacy and the relationship between the belief in self-efficacy and selected determinants of quality of life of mothers (negative and positive feelings, physical and social situation). The study was conducted among 50 women aged from 23 to 52 years, who are mothers of children with cerebral palsy – the age of children was in the range from 1 to 16 years. Undertaken analysis showed statistically significant associations with significant strength between self-efficacy of mothers and some aspects related to their quality of live. A high level of self-efficacy related to: in the area of emotions – with lower levels of perceived negative emotions (but not associated with positive emotions); in the area if cognitive functions – with a high level of declared knowledge about their child's illness; in the area of social functions – the maintenance of interpersonal relationships, not giving up a social life outside and the realization of their hobby